The Hidden Struggle of Caregiving
Caregiving is often called a labor of love, but what lies behind the phrase is a complex, exhausting, and often lonely journey. When someone we love is diagnosed with Alzheimer’s, the disease doesn’t only belong to them—it invades the lives of everyone who loves them.
In Who’s on First? Alzheimer’s: The Terminal Descent, Patricia J. Pelham captures this truth with piercing honesty. She describes the sleepless nights, the endless repetition of conversations, the constant vigilance required to keep her husband safe, and the emotional toll of watching him fade.
Yet, amid the struggle, Patricia also reveals the quiet heroism of caregivers. The strength to show up every day. The ability to find gratitude in small victories. The courage to endure heartbreak while holding on to hope.
For many caregivers, speaking openly about the struggle feels impossible. That is why books like Patricia’s are vital. They remind us that we are not alone, that our challenges are shared by countless others, and that love—even tested to its limits—can remain unbroken.
Caregiving is not just a responsibility. It is an act of courage, sacrifice, and profound love.